Meet a Man Whose Body Is Turning Into Bone

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  • Published on: 21 November 2019
  • Mothers from around the world came together to support each other as they raise their children who have a rare disease that turns their bodies to solid bone. The condition is called fibrodysplasia ossificans progressiva (FOP). It is believed to affect just one in every 2 million people worldwide, according to the Department of Health and Human Services, and there are only a few hundred known cases. Families gathered in Orlando to spend time with Dr. Fred Kaplan who discovered the FOP gene.
  • Runtime : 3:45
  • health florida Inside Edition Inside_Edition IE Health bones muscles rare condition fop muscle to bone fibrodysplasia ossificans orlando

COMMENTS: 40

  • Inside Edition
    Inside Edition   4 months ago

    If you'd like to learn more about FOP, check out this story we did on people with the rare disease in the past: https://youtu.be/73QhHP6Ktos

  • Toxic
    Toxic   3 days ago

    my cousin has FOP what a brave lad

  • No Bo
    No Bo   1 weeks ago

    Dogs love him

  • Xxninjaboy L1
    Xxninjaboy L1   1 weeks ago

    I just feel bad bc they don’t get to do most stuff ppl can do but they can till reach there goals hopefully there’s a cure.

  • JellyPlayz
    JellyPlayz   1 weeks ago

    Who writes the title I wanna meet That person

  • Harry Theking
    Harry Theking   1 weeks ago

    I hope that they lived a good life or even get a miracle

  • Matt_14
    Matt_14   1 weeks ago

    that kid joe goes to my school

  • Tw00zY
    Tw00zY   1 weeks ago

    I would like to know have they ever let's say if someone with this does and few minutes later someone comes in and sees if they can force there mucleles out of this position

  • Fishy Boi
    Fishy Boi   2 weeks ago

    I feel super horrible for theses people. If I could do something to help them I would pray for them and let god to the work for them.

  • Tee Hee
    Tee Hee   2 weeks ago

    What's amazing about humans is how we can even make cures to things

  • Matthew McCabe
    Matthew McCabe   2 weeks ago

    Can we just bless these people, and be happy that we don’t have to live like this...

  • Elijah Doodles
    Elijah Doodles   2 weeks ago

    To the 489 people who disliked this.....FRICK OFF

  • Mont
    Mont   2 weeks ago

    SCP - 096 Has breached containment. I Want all personnel to evacuate,immediately.Edit: its an SCP reference..just a joke

  • F f
    F f   2 weeks ago

    I can't even process this, my heart break for them.

  • James Hopper
    James Hopper   2 weeks ago

    Research for this should have limitless funding this is horrible no one should have to live like that

  • ANDRE PAY
    ANDRE PAY   2 weeks ago

    Sleep paralysis but its forever

  • Gage Harper
    Gage Harper   2 weeks ago

    I did my biology project on this disease 2 years ago

  • Rayana El Didi
    Rayana El Didi   2 weeks ago

    I feel so bad for these kids its just heart-breaking thinking if i was in their shoes🥺😭💔hope they get better very soon and live their life to the fullest

  • Sponge Gaming
    Sponge Gaming   2 weeks ago

    euthanasia for the mentally feeble das ist gut

  • Jungkook’s Wifey
    Jungkook’s Wifey   2 weeks ago

    I swear to myself, why every disabled is so independent more than me.

  • Nae_Stormexy
    Nae_Stormexy   2 weeks ago

    0:47 sorry but I started laughing sooo hard fam 😂

  • q q
    q q   2 weeks ago

    I feel so bad for these people just imagine what they go through that's we should always be thankful to God that we're healthy like I would rather die then have that disease.

  • Cade R
    Cade R   2 weeks ago

    Things like this remind me to be grateful that I can do something as simple as walking remember to humble yourself god bless

  • Monopoly Man
    Monopoly Man   2 weeks ago

    When your character glitches during the cutscene